Oct 3, 2019
Logan chats with Daniel DeFabio and Bo Bigelow, co-founders of Disorder: The Rare Disease Film Festival and fathers of children with rare diseases. DeFabio and Bigelow discuss how they met each other; the importance of finding other patients with rare diseases; and the power of film and storytelling to advocate for and bring rare diseases to light. Disorder started in Boston two years ago, with two full days of film on rare diseases. This year the Rare Disease Film Festival is at Mission Bay Conference Center at UCSF in San Francisco November 9-10. For more information, visit https://www.rarediseasefilmfestival.com/